I have put this off long enough, I guess. Now that it's over, I want to believe it was all a dream and pretend that it didn't really happen. That's why it has taken me so long to update. This will be my final post about my lost weekend. After this one, it will be normal (hopefully fun) things I will write about. This doesn't mean I won't nag you to give blood and update you on fund raisers blah blah blah. = )
Okay, the beginning is the only place I know to start and my memory is not the best, so a lot will be left out, I'm sure. My last post was August 21st so I'll start there.
Went back into the hospital for my last round on August 25th & came home on the 28th. The time I spend getting chemo is really not too bad once you get passed the PICC and anxiety. I saw my Leukemia twin (She was right across the hall, in for a fever. She was about a week ahead of me thru all this) She was going home the next day but that night we were running back and forth between our rooms visiting and the nurses thought it was funny. = )
So chemo went well, I did more research on AML and messed with the nurses. One of the techs got me interested in a show you can watch on your comp called "LOST". It helped pass the time and now I'm in Season 4. Too funny. I DON'T WATCH TV! Anyway, I slept for the first 3 days home (as usual). My counts sucked when I had them checked on the 2nd of September so I got a shot of nulasta and they told me they were going to set it up for me to get blood and platelets at St. Frances (Germantown Methodist doesn't do outpatient transfusions anymore. go figure.) on the 4th. Oh goody. A new hospital where I don't know anyone or the way they do things. my favorite. I got there on time. They put me in my room immediately....and I sat there. For 2 hours I sat there without even a hello from the nurse. I'm like uh-uh. So I get up and go find one and with a carrot in my mouth and leaning against the wall, they got a "What's up, doc?" "Oh! Your nurse is getting someone ready for surgery and will be with you as soon as she can." Yeah. Thanks for letting me know. I'm already in a strange place...been poked and prodded till I'm crazy. Just give me a break and let me know what's happening. That's all I ask. After that when my nurse finally came in, what a sweetheart!!!! Did I feel bad for getting upset? nope! But I really did like her a lot and the rest of the day was a breeze.
Went back to FCC on the 5th and my counts still sucked even after the transfusions. sigh. Started feeling pretty bad on the 6th, started running a fever on the 7th, back to Germ. Meth. the 8th. This was probably the worst week of the last 4 months. On the 8th I got more blood and platelets, on the 9th another transfusion & a CT Scan, on the 10th more platelets, a chest x-ray and IV Magnesium, on the 12th more platelets and a Cat Scan on the 14th 2 more units of blood and they set me free. Marty says I was out of it thru most of it. I don't remember much but I do remember feeling horrible and that it was never gonna end. But it did and here I am back to my ole pain in the ass self. = )
On the 15th I went back to FCC for my CBC and although it wasn't great, it was better. Saw Dr. Weeks (God love him!) on the 16th and got released until the 30th. yeehaaaa! On the 30th things were looking good so he gave me another week off. I went in on the 7th and he started to give me a 3 month reprieve but I opened my big mouth and told him about a few concerns I had and he ran some blood tests and told me to come back in 6 weeks. STILL! 6 weeks is a lifetime! I was happy. Still don't know the results of the blood work cuz I got so caught up in Jane being here I forgot to call until today and Loretta (Dr. Weeks' nurse) will call me tomorrow. So...there ya go. All caught up on that subject, I'll start a new post for the fun stuff. = ) Oh! One more thing. I can't say enuff good about G'town Meth nurses! Most wonderful bunch of caring, loving women in the world!
Tuesday, October 21, 2008
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