So we went to Vandy. Loved Nashville. Very user friendly. Easy access to everything. Lots of good places to eat. Walking is my favorite mode of travel and walking in Nashville is the best way to go. Got there Sunday evening around 5 and as soon as we got settled, we walked. We walked over to Vanderbilt Hospital/Clinic. Walked thru and found our way around. Walked a different way back and stopped at Mellow Mushroom for supper. Had a wonderful Calzone that I couldn't finish. HUGE! Walked back to the Hotel and chilled. My first appointment was for blood work, I can't remember what time but we were about an hour and a half early and it was a good thing cuz we had a flat tire. Got the spare on and headed to the Clinic. Still early. Blood work went fine, I'm used to being a pin cushion. Then upstairs to meet Dr. Jagasia. Met with the research Doc first. He asked me about my AML history. What made me first go to the doc, etc. How much time do I spend out of the bed/chair. Should have given him my blog addy. = ) I can't remember! Anyway, then Dr. Jagasia came in. I'm sure the man is a phenomenal doctor. He's very confident, I've heard good things about him. I hear he's one of the best. But I still feel the sting where he slapped me across the face. I like people to be straight up with me but dayum! No compassion. Very clinical. I have a 40 - 45% chance of making it through this Stem Cell Transplant. IF I do, I have a 60% chance of it causing me long term health issues. What ever my donor is "predestined" to get, my chances of these issues are increased. I can't remember much else. I think I was in shock. Not only by the news but by the presentation. So, we left there and went back to the hotel, I think. It's kind of a blur. Actually, I can't remember what we did. I don't remember supper. I remember breakfast. Okay so the next day, Tuesday, I had a PFT & MUGA scheduled and no caffeine after midnight. great. The MUGA is a heart test. Radioactive something or another thru an IV to watch it go in and out of your heart thru this machine. Really was no big deal. The PFT is a breathing test. No biggie except I was almost over my URI but not quite. Have no idea what the results were of either. Left the hospital and got coffee at the nearest place possible! Got the tire replaced and as much as I loved Nashville, I was so ready to leave it!
Wednesday, I think it was, Peggy called me to tell me that I needed to get some more chemo. It has been 2 months and we don't want the Leukemia taking hold again. okay. This time I'll be in the hospital for 12 doses in 6 days so I'll probably be there 10 days to 2 weeks.
I'm not going to go into all that happened since then cuz it confuses the hell out of me. Yes, chemo Monday (today). No chemo until....
What it boils down to, I decided I wanted a second opinion from MD Anderson in Houston. It's a Cancer Center. They do 600 SCT a year and Vandy does 110. What we're waiting for now is to see if MDA can see me SOON. If I haven't heard from them by Wednesday, I'm to call Vickie (Dr. Weeks' right hand) back. If they can't see me soon, I go with the chemo/Vandy plan which has me doing the transplant around mid June. If they can see me, well, everything is up in the air again. So that's where I am now.
Love you all!
Tuesday, May 5, 2009
Subscribe to:
Post Comments (Atom)

2 comments:
Doctors can be butts.
Poose
Wow! That's pretty overwhelmimg! Keep us updated.I'm praying like crazy for you!!! Love ya!
Deb
Post a Comment